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ASPIRES is an on-line resource for spouses and family members of adults diagnosed or suspected to be on the autistic spectrum.  Our approach to one another and towards our "significant others" is directed towards solving problems in our relationship with a spectrum-sitting spouse.

ASPIRES is an e-mail subscription list for individuals with AS, and those who have a parent, spouse, or child with AS.  We share our family and relational experiences, resources and survival tips as well as offer encouragement and hope.  Through sharing, we hope to lighten one another's burdens and find positive solutions to many of the troubling challenges that characterize our relationships and bridge the communication gap that exists in everyday life.

"If there were no change, there would be no butterflies"
Author Unknown
 

 


The power of empathy
The empath is a recurring character in Star Trek, usually a woman, who has the ability to read the emotions of others, sometimes at great distance. What is truly sci-fi is that almost all humans possess this apparently fantastical ability. Empathy is a true human superpower. Most of us are empaths. Most of us feel for strangers, can read other people's emotions and can feel other people's pain. Some of us can even take on the suffering of others in an effort to help them. Aremarkable proof of our empathic talents is in the movies. Almost anyone in the world can sit down to watch a film and, in a matter of minutes, begin feeling for and identifying with total strangers. Because we see it all the time, we rarely marvel at this incredible talent. We have the power to put ourselves in the shoes of people who don't even exist. These fictional creatures make us laugh, fear and cry.
Asperger diagnosis came late
A single university seminar made everything about Jen Birch’s at times difficult life make sense like "a bolt from heaven". Jen had struggled for more than 40 years with undiagnosed asperger syndrome and had spent months at Kingseat psychiatric hospital. But her lifechanged forever the day she heard the lecturer describe her condition. Jen was born into a dairy farming family in Karaka and was different from other children from day one. "Mum says she could tell I was different from the day I was born but she couldn’t see what was different. "Fifty years ago there wasn’t even a term which could’ve been put on it." The Greenlane resident says she was socially withdrawn and fearful of sudden movements and sudden noises. "When I was a small I was taken to see a train. I love trains now but as a child I was terrified by the huffing and puffing and especially when it let out the squeal of the whistle." Other children were thrilled to see the train but Jen says she hunched over in fear. Heightened senses are typical of people with asperger syndrome or other autism spectrum disorders.

It's not just boys who are autistic
When it was first discovered more than 60 years ago, Asperger's syndrome was thought to be a male-only condition. But now that more and more girls are being diagnosed with it, why do we hear so little about them, wonders Joanna Moorhead.  Ten years ago, when she was 11, Robyn Steward was diagnosed with Asperger's syndrome, a form of autism that made that already challenging time particularly difficult. While other girls were forming tight friendships, hanging out with each other for hours after school, Steward had trouble fitting in with her contemporaries - more so, she suspects, than if she had been a teenage boy with the syndrome. "At that age," she says, "boys aren't connecting with one another so much, but for girls it's so cliquey. Also, the stuff I was interested in seemed even more weird in a girl than a boy. It was mostly computers and music with me - boys can get away with being a bit obsessive, but it seems more strange in a girl."

Asperger's: My life as an Earthbound alien
One CNN manager, who asked to remain anonymous, recently learned -- at 48 -- that she has Asperger's syndrome, a form of autism. Today she shares an inside view of life with the condition.
Recently, at 48 years of age, I was diagnosed with Asperger's syndrome. For most of my life, I knew that I was "other," not quite like everyone else. I searched for years for answers and found none, until an assignment at work required me to research autism. During that research, I found in the lives of other people with Asperger's threads of similarity that led to the diagnosis. Although having the diagnosis has been cathartic, it does not change the "otherness." It only confirms it.

M
ost autistic adults 'isolated'
Thousands of adults with autism find themselves isolated and ignored, one of the largest studies into people with the condition has suggested. -The National Autistic Society Scotland said more than half of an estimated 50,000 autistic adults and their families do not get the support needed. It claimed the government does not know exactly how many people have autism, making it impossible to plan services. The charity spoke to 175 adults with the condition and their families. The I Exist report said thousands of adults with autism faced a "miserable daily reality" which left them feeling isolated and ignored, unable to access the required support, and often completely dependent on their "overburdened" families.

How  to Love Without Emotions
By Robert W. Murray
It is widely said and accepted that the autistic person has serious trouble connecting with the world around them, particularly on an emotional level. This ranges from grief, to happiness, and from joy to despair. The emotional state of others is something that is completely beyond my capability in comprehending. When I see someone getting emotional over an event or situation, I find myself confused and bothered that I am unable to share in that moment with them, whether it be through tears or great enjoyment. Perhaps, though, the area which I most fundamentally misunderstand or have trouble deducing is what is referred to as ‘love’.

Supreme Courts rules juries should hear AS DX.
A-36-07 State v. Franklin Burr, II
(Middlesex County and Statewide)
Argued 3/10/08
Under the circumstances presented, was evidence that defendant suffered from Asperger’s Disorder admissible in defending against charges of sexual molestation of a minor? While expert psychiatric testimony can sometimes take a trial on an irrelevant side trip, in this case it's a worthwhile excursion to help the jury -- which is engaged in a search for the truth -- better evaluate the case in front of it.

Today's Man: Adventures of a Young Man with Asperger Syndrome
Lizzie Gottlieb's brother Nicky was never like most other kids. Very smart, but talked late, walked late, didn't make eye contact, didn't socially connect.  It wasn't until he was 20 that Nicky was diagnosed with Asperger's Syndrome, a kind of high-functioning neurological cousin of autism that is being diagnosed in more and more young Americans.  They can be high achievers -- many in computer science or engineering. But it's not an easy life  Now  Lizzie and Nicky are telling their story.  This hour, On Point: living with Asperger's Syndrome, up close 

Asperger's and IT: Dark secret or open secret?
Asperger's Syndrome has been a part of IT for as long as there's been IT. So why aren't we doing better by the Aspies among us?

Controversial New Movement: Autistic and Proud
Activists Say Stop Looking for a Cure and Accept Autistic People as They Are.

 Celebrate Neurodiversity 

Autism's Raising A Voice - Mark Leland's "Missing Pieces" Music & DVD

ASPECT Consultancy Report

A National Report on the Needs of Adults with Asperger Syndrome ~ Compiled by Luke Beardon & Genevieve Edmonds 2007 

A GREAT article for children, siblings, partner's and spouses connected to AS
Growing up in an Asperger Family
by Maxine Aston
View as HTML or download as a PDF.

Asperger Syndrome and Alcohol
Drinking to Cope?

Asperger Syndrome and Alcohol exposes the unexplored problem of people with Autism Spectrum Disorders (ASDs) using alcohol as a coping mechanism to deal with everyday life.  Utilising their professional and personal experience, the authors provide an overview of ASDs and of alcohol abuse, and explore current knowledge about where the two overlap. Tinsley explores his own personal history as someone with an ASD who has experienced and beaten alcohol addiction. He discusses how the impact of his diagnosis and his understanding of the condition played a huge part in his recovery, and how by viewing his life through the prism of autism, his confusion has been replaced by a greater understanding of himself and the world around him.  This inspiring book on an under-researched area will be of interest to professionals working with people with ASDs, as well as individuals with ASDs who may be dealing with alcohol or substance misuse, and their families.

Matthew Tinsley and Sarah Hendrickxs

 

Families of Adults with Autism
Stories and Advice for the Next Generation

Families of Adults with Autism is a collection of real-life stories of people on the autism spectrum growing up, as told by their parents and siblings.  The individual accounts explore the challenges that families of people with autism have faced, and the techniques they have used to improve the quality of their children's lives, from mega-doses of vitamins and dietary changes to intensive interaction. The contributors also relate how they have worked with their children or siblings to help them to function at their highest possible level, be it showing an awareness of their environment, holding down a full-time job in a local store, competing in the Special Olympics, or achieving international recognition as an artist.

Edited by Jane Johnson and Anne Van Rensselaer

 

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"We each have our own way of living in the world, together we are like a symphony.
Some are the melody, some are the rhythm, some are the harmony
               It all blends together, we are like a symphony, and each part is crucial.
We all contribute to the song of life."
...Sondra Williams

We might not always agree; but TOGETHER we will make a difference.

 

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Updated 07/06/2008