| |
|
ASPIRES is an on-line
resource for spouses and family members of adults diagnosed or
suspected to be on the autistic spectrum. Our approach to one
another and towards our "significant others" is directed towards
solving problems in our relationship with a spectrum-sitting
spouse.
ASPIRES is an e-mail
subscription list for individuals with AS, and those who have a
parent, spouse, or child with AS. We share our family and
relational experiences, resources and survival tips as well as offer
encouragement and hope. Through sharing, we hope to lighten
one another's burdens and find positive solutions to many of the
troubling challenges that characterize our relationships and bridge
the communication gap that exists in everyday life.
"If there were no change,
there would be no butterflies"
Author Unknown

The power of empathy
The empath is a recurring character in Star
Trek, usually a woman, who has the ability to read the emotions of
others, sometimes at great distance. What is truly sci-fi is that
almost all humans possess this apparently fantastical ability.
Empathy is a true human superpower. Most of us are empaths. Most of
us feel for strangers, can read other people's emotions and can feel
other people's pain. Some of us can even take on the suffering of
others in an effort to help them. Aremarkable proof of our empathic
talents is in the movies. Almost anyone in the world can sit down to
watch a film and, in a matter of minutes, begin feeling for and
identifying with total strangers. Because we see it all the time, we
rarely marvel at this incredible talent. We have the power to put
ourselves in the shoes of people who don't even exist. These
fictional creatures make us laugh, fear and cry.
Asperger diagnosis came late
A single university seminar made everything
about Jen Birch’s
at times difficult life make sense like "a
bolt from heaven". Jen had struggled for more than 40 years with
undiagnosed asperger syndrome and had spent months at Kingseat
psychiatric hospital. But her life changed
forever the day she heard the lecturer describe her condition. Jen
was born into a dairy farming family in Karaka and was different
from other children from day one. "Mum says she could tell I was
different from the day I was born but she couldn’t see what was
different. "Fifty years ago there wasn’t even a term which could’ve
been put on it." The Greenlane resident says she was socially
withdrawn and fearful of sudden movements and sudden noises. "When I
was a small I was taken to see a train. I love trains now but as a
child I was terrified by the huffing and puffing and especially when
it let out the squeal of the whistle." Other children were thrilled
to see the train but Jen says she hunched over in fear. Heightened
senses are typical of people with asperger syndrome or other autism
spectrum disorders.
It's not just boys who are autistic
When it was first discovered more than 60 years ago, Asperger's
syndrome was thought to be a male-only condition. But now that
more and more girls are being diagnosed with it, why do we hear
so little about them, wonders Joanna Moorhead. Ten years
ago,
when she was 11, Robyn Steward was diagnosed with Asperger's
syndrome, a form of autism that made that already challenging
time particularly difficult. While other girls were forming
tight friendships, hanging out with each other for hours after
school, Steward had trouble fitting in with her contemporaries -
more so, she suspects, than if she had been a teenage boy with
the syndrome. "At that age," she says, "boys aren't connecting
with one another so much, but for girls it's so cliquey. Also,
the stuff I was interested in seemed even more weird in a girl
than a boy. It was mostly computers and music with me - boys can
get away with being a bit obsessive, but it seems more strange
in a girl."
Asperger's: My life as an Earthbound alien
One CNN manager, who asked to remain
anonymous, recently learned -- at 48 -- that she has Asperger's
syndrome, a form of autism. Today she shares an inside view of
life with the condition.
Recently, at 48 years of age, I was diagnosed with Asperger's
syndrome. For most of my
life, I knew that I was "other," not quite like everyone else. I
searched for years for answers and found none, until an
assignment at work required me to research autism. During that
research, I found in the lives of other people with Asperger's
threads of similarity that led to the diagnosis. Although having
the diagnosis has been cathartic, it does not change the
"otherness." It only confirms it.
Most
autistic adults 'isolated'
Thousands of adults with autism find themselves isolated
and ignored, one of the largest studies into people with the
condition has suggested. -The National Autistic Society Scotland
said more than half of an
estimated 50,000 autistic adults and their families do not get
the support needed. It claimed the government does not know
exactly how many people have autism, making it impossible to
plan services. The charity spoke to 175 adults with the
condition and their families. The I Exist report said thousands
of adults with autism faced a "miserable daily reality" which
left them feeling isolated and ignored, unable to access the
required support, and often completely dependent on their
"overburdened" families.
How to Love Without Emotions
By Robert W. Murray
It is widely said and
accepted that the autistic person has serious trouble connecting
with the world around them, particularly on an emotional level.
This ranges from grief, to happiness, and from joy to despair.
The emotional state of others is something that is completely
beyond my capability in comprehending. When I see someone
getting emotional over an event or situation, I find myself
confused and bothered that I am unable to share in that moment
with them, whether it be through tears or great enjoyment.
Perhaps, though, the area which I most fundamentally
misunderstand or have trouble deducing is what is referred to as
‘love’.
Supreme Courts rules
juries should hear AS DX. 
A-36-07 State v. Franklin Burr, II
(Middlesex County and Statewide)
Argued 3/10/08
Under the circumstances presented, was evidence that defendant suffered
from Asperger’s Disorder admissible in defending against charges of sexual
molestation of a minor? While expert psychiatric testimony can sometimes
take a trial on an irrelevant side trip, in this case it's a worthwhile
excursion to help the jury -- which is engaged in a search for the truth
-- better evaluate the case in front of it.
Today's
Man: Adventures of a Young Man with
Asperger Syndrome
Lizzie Gottlieb's brother Nicky was
never like most other kids. Very smart, but talked late, walked late,
didn't make
eye contact, didn't socially connect. It wasn't until he was 20 that
Nicky was diagnosed with Asperger's Syndrome, a kind of high-functioning
neurological cousin of autism that is being diagnosed in more and more
young Americans. They can be high achievers -- many in computer science
or engineering. But it's not an easy life Now Lizzie and Nicky are
telling their story. This hour, On Point: living with Asperger's
Syndrome, up close
ASPECT Consultancy Report
A National Report on the Needs of
Adults with Asperger Syndrome ~ Compiled by Luke Beardon & Genevieve
Edmonds 2007 
A GREAT article for
children, siblings, partner's and spouses connected to AS
Growing up in an
Asperger Family
by Maxine Aston
View as HTML
or
download as a PDF.

Asperger Syndrome and Alcohol
Drinking to Cope?
Asperger Syndrome and Alcohol exposes the
unexplored problem of people with Autism Spectrum Disorders (ASDs)
using alcohol as a coping mechanism to deal with everyday life.
Utilising their professional and personal experience, the
authors provide an overview of ASDs and of alcohol abuse, and
explore current knowledge about where the two overlap. Tinsley
explores his own personal history as someone with an ASD who has
experienced and beaten alcohol addiction. He discusses how the
impact of his diagnosis and his understanding of the condition
played a huge part in his recovery, and how by viewing his life
through the prism of autism, his confusion has been replaced by
a greater understanding of himself and the world around him.
This inspiring book on an under-researched area will be of
interest to professionals working with people with ASDs, as well
as individuals with ASDs who may be dealing with alcohol or
substance misuse, and their families.
Matthew Tinsley and Sarah Hendrickxs
|

Families of Adults with Autism
Stories and Advice for the Next Generation
Families of Adults with Autism
is a collection of real-life stories of people on the autism
spectrum growing up, as told by their parents and siblings.
The individual accounts explore the challenges that families of
people with autism have faced, and the techniques they have used
to improve the quality of their children's lives, from
mega-doses of vitamins and dietary changes to intensive
interaction. The contributors also relate how they have worked
with their children or siblings to help them to function at
their highest possible level, be it showing an awareness of
their environment, holding down a full-time job in a local
store, competing in the Special Olympics, or achieving
international recognition as an artist.
Edited by Jane Johnson and Anne Van Rensselaer |
Go Top
|
|